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http://hdl.handle.net/1942/36375
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DC Field | Value | Language |
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dc.contributor.author | Boziki, Marina | - |
dc.contributor.author | Styliadis, Charis | - |
dc.contributor.author | Bakirtzis, Christos | - |
dc.contributor.author | Grigoriadou, Eleni | - |
dc.contributor.author | Sintila, Aggeliki-Styliani | - |
dc.contributor.author | Nikolaidis, Ioannis | - |
dc.contributor.author | Vrienniou, Aliki | - |
dc.contributor.author | GEYS, Lotte | - |
dc.contributor.author | Pelidou, Sygkliti-Henrietta | - |
dc.contributor.author | Probert, Lesley | - |
dc.contributor.author | Papazisis, Georgios | - |
dc.contributor.author | Bamidis, Panagiotis | - |
dc.contributor.author | Grigoriadis, Nikolaos | - |
dc.date.accessioned | 2022-01-05T09:34:10Z | - |
dc.date.available | 2022-01-05T09:34:10Z | - |
dc.date.issued | 2021 | - |
dc.date.submitted | 2021-12-25T18:35:38Z | - |
dc.identifier.citation | Frontiers in neurology, 12 (Art N° 757038) | - |
dc.identifier.issn | 1664-2295 | - |
dc.identifier.uri | http://hdl.handle.net/1942/36375 | - |
dc.description.abstract | Background: In the context of the coronavirus disease 2019 (COVID-19) pandemic, the constant needs of people with multiple sclerosis (PwMS) and their caregivers were urgently highlighted.Aim: The present study aims to capture the effects of the COVID-19 pandemic in several aspects of the quality of life of PwMS, in perception and behavior to COVID-19 and multiple sclerosis (MS), as well as concerning healthcare, working conditions, and the willingness toward COVID-19 vaccination.Methods: This study is an initiative of the Hellenic Academy of Neuroimmunology (HEL.A.NI.) and it has been included in the MS Data Alliance (MSDA) Catalog, which can be accessed after creating an account on . Two online questionnaires were administered: (i) impact of the COVID-19 pandemic on the quality of life, behavior, and healthcare of PwMS (Questionnaire A) and (ii) vaccination against COVID-19 (Questionnaire B). People with MS were invited to participate by the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS).Results: Three-hundred-ninety PwMS responded to Questionnaire A, whereas 176 PwMS provided answers for Questionnaire B. Older age, longer disease duration, and higher MS-related disability were associated with the increased perceived sensitivity toward severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, as well as the increased perceived severity of COVID-19 upon potential infection. A significant proportion of PwMS experienced restricted access to MS-related health professionals, disease-modifying therapy (DMT) prescription, and/or to MS-related laboratory examination due to the pandemic. Subgroups of PwMS reported exacerbated symptoms (i.e., chronic MS-related symptoms, fatigue and/or worsening of pre-existing fatigue, and sexual dysfunction and or/worsening of pre-existing sexual dysfunction). Overall, the majority of the participants reported either a strong willingness to get vaccinated against COVID-19 or a likeliness to undergo vaccination. Being aware of the HEL.A.NI. recommendations regarding COVID-19 vaccination for PwMS were reported to increase the willingness of the participants to receive the vaccine.Conclusions: Our results highlight the necessity of scientific and patient organizations in taking joint action to increase awareness on health-related issues during the pandemic and to provide accurate and up-to-date guidance for PwMS. Online information and communications technology (ICT) tools for polling public belief and behavior may prove valuable as means of retaining active routes of communication between stakeholders. | - |
dc.description.sponsorship | We would like to acknowledge Vasiliki Maraka and Moira Tzitzika of the Hellenic Federation of Persons with Multiple Sclerosis (HFoPwMS) for rapidly and effectively bringing the initiative into public awareness via appropriate publicity measures, as well as the members of the General Assembly of the Hellenic Academy of Neuroimmunology (HEL.A.NI.) for reviewing the questionnaires and supporting the initiative. | - |
dc.language.iso | en | - |
dc.publisher | FRONTIERS MEDIA SA | - |
dc.rights | 2021 Boziki, Styliadis, Bakirtzis, Grigoriadou, Sintila, Nikolaidis, Vrienniou, Geys, Pelidou, Probert, Papazisis, Bamidis and Grigoriadis. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. | - |
dc.subject.other | COVID-19 pandemic | - |
dc.subject.other | people with multiple sclerosis (PwMS) | - |
dc.subject.other | caregivers | - |
dc.subject.other | quality of life (QoL) | - |
dc.subject.other | vaccination | - |
dc.subject.other | information and communications technology (ICT) tools | - |
dc.title | A National Representative, Cross-Sectional Study by the Hellenic Academy of NeuroImmunology (HEL.A.NI.) on COVID-19 and Multiple Sclerosis: Overall Impact and Willingness Toward Vaccination | - |
dc.type | Journal Contribution | - |
dc.identifier.volume | 12 | - |
local.format.pages | 19 | - |
local.bibliographicCitation.jcat | A1 | - |
dc.description.notes | Grigoriadis, N (corresponding author), Aristotle Univ Thessaloniki, Neurol Univ Dept 2, Amer Hellen Educ & Progress Assoc AHEPA Gen Hosp, Thessaloniki, Greece.; Grigoriadis, N (corresponding author), Hellen Acad NeuroImmunol HEL A NI, Thessaloniki, Greece. | - |
dc.description.notes | grigoria@med.auth.gr | - |
local.publisher.place | AVENUE DU TRIBUNAL FEDERAL 34, LAUSANNE, CH-1015, SWITZERLAND | - |
local.type.refereed | Refereed | - |
local.type.specified | Article | - |
local.bibliographicCitation.artnr | 757038 | - |
dc.identifier.doi | 10.3389/fneur.2021.757038 | - |
dc.identifier.pmid | 34899577 | - |
dc.identifier.isi | 000729365100001 | - |
local.provider.type | wosris | - |
local.description.affiliation | [Boziki, Marina; Bakirtzis, Christos; Grigoriadou, Eleni; Sintila, Aggeliki-Styliani; Nikolaidis, Ioannis; Grigoriadis, Nikolaos] Aristotle Univ Thessaloniki, Neurol Univ Dept 2, Amer Hellen Educ & Progress Assoc AHEPA Gen Hosp, Thessaloniki, Greece. | - |
local.description.affiliation | [Boziki, Marina; Bakirtzis, Christos; Nikolaidis, Ioannis; Pelidou, Sygkliti-Henrietta; Probert, Lesley; Grigoriadis, Nikolaos] Hellen Acad NeuroImmunol HEL A NI, Thessaloniki, Greece. | - |
local.description.affiliation | [Styliadis, Charis; Bamidis, Panagiotis] Aristotle Univ Thessaloniki, Sch Med, Lab Med Phys & Digital Innovat, Thessaloniki, Greece. | - |
local.description.affiliation | [Vrienniou, Aliki] Hellen Federat Persons Multiple Sclerosis, Athens, Greece. | - |
local.description.affiliation | [Geys, Lotte] Univ MS Ctr UMSC, Campus Diepenbeek, Diepenbeek, Belgium. | - |
local.description.affiliation | [Geys, Lotte] Univ Hasselt, Biomed Res Inst BIOMED, Diepenbeek, Belgium. | - |
local.description.affiliation | [Geys, Lotte] Univ Hasselt, Data Sci Inst, Diepenbeek, Belgium. | - |
local.description.affiliation | [Pelidou, Sygkliti-Henrietta] Univ Ioannina, Sch Med, Dept Neurol, Ioannina, Greece. | - |
local.description.affiliation | [Probert, Lesley] Hellenic Pasteur Inst, Immunol Dept, Lab Mol Genet, Athens, Greece. | - |
local.description.affiliation | [Papazisis, Georgios] Aristotle Univ Thessaloniki, Sch Med, Dept Clin Pharmacol, Thessaloniki, Greece. | - |
local.uhasselt.international | yes | - |
item.fulltext | With Fulltext | - |
item.accessRights | Open Access | - |
item.contributor | Boziki, Marina | - |
item.contributor | Styliadis, Charis | - |
item.contributor | Bakirtzis, Christos | - |
item.contributor | Grigoriadou, Eleni | - |
item.contributor | Sintila, Aggeliki-Styliani | - |
item.contributor | Nikolaidis, Ioannis | - |
item.contributor | Vrienniou, Aliki | - |
item.contributor | GEYS, Lotte | - |
item.contributor | Pelidou, Sygkliti-Henrietta | - |
item.contributor | Probert, Lesley | - |
item.contributor | Papazisis, Georgios | - |
item.contributor | Bamidis, Panagiotis | - |
item.contributor | Grigoriadis, Nikolaos | - |
item.validation | ecoom 2022 | - |
item.fullcitation | Boziki, Marina; Styliadis, Charis; Bakirtzis, Christos; Grigoriadou, Eleni; Sintila, Aggeliki-Styliani; Nikolaidis, Ioannis; Vrienniou, Aliki; GEYS, Lotte; Pelidou, Sygkliti-Henrietta; Probert, Lesley; Papazisis, Georgios; Bamidis, Panagiotis & Grigoriadis, Nikolaos (2021) A National Representative, Cross-Sectional Study by the Hellenic Academy of NeuroImmunology (HEL.A.NI.) on COVID-19 and Multiple Sclerosis: Overall Impact and Willingness Toward Vaccination. In: Frontiers in neurology, 12 (Art N° 757038). | - |
crisitem.journal.issn | 1664-2295 | - |
crisitem.journal.eissn | 1664-2295 | - |
Appears in Collections: | Research publications |
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A National Representative, Cross-Sectional Study by the Hellenic Academy of NeuroImmunology (HEL.A.NI.) on COVID-19 and Multiple Sclerosis_ Overall Impact and Willingness Toward Vaccination.pdf | Published version | 2.72 MB | Adobe PDF | View/Open |
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