Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/14352
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dc.contributor.authorHARDONK, Stefan-
dc.contributor.authorDesnerck, Greetje-
dc.contributor.authorLoots, Gerrit-
dc.contributor.authorMatthijs, Liesbeth-
dc.contributor.authorVan Hove, Geert-
dc.contributor.authorVan Kerschaver, Erwin-
dc.contributor.authorSigurjónsdóttir, Hanna Björg-
dc.contributor.authorVanroelen, Christophe-
dc.contributor.authorLouckx, Fred-
dc.date.accessioned2012-11-16T07:51:06Z-
dc.date.available2012-11-16T07:51:06Z-
dc.date.issued2011-
dc.identifier.citationVOLTA REVIEW, 111 (3), p. 299-324-
dc.identifier.issn0042-8639-
dc.identifier.urihttp://hdl.handle.net/1942/14352-
dc.description.abstractThe objective of this study is to analyze parental perspectives concerning the use of (re)habilitation services after Universal Newborn Hearing Screening (UNHS). A qualitative study design was used involving children with moderate-to-profound hearing loss who were born between 1999 and 2001 and who are registered in the UNHS program in Flanders, Belgium. Parents of these children were interviewed using a topic list and a chronological scheme to register meaningful events while using (re)habilitative services. Subsequently, thematic content analysis was applied to the transcripts of the interviews. Analysis found that differences exist in parental experiences and some parents who were referred directly from UNHS to an ear, nose, and throat department were left with feelings of uncertainty and anxiety, creating an obstacle in the care trajectory for their child. The parental perception of diagnosis/care was also a cause for delay. Parents considered educational support at home, after UNHS, important. Results indicate that implementation of a UNHS program is in itself insufficient to ensure early intervention, and that adequate support is needed during the early care trajectory to avoid delay and parental distress.-
dc.language.isoen-
dc.subject.otherpediatric cochlear implantation; hearing-loss; outcomes; families; services; language; speech; US-
dc.titleFrom Screening to Care: A Qualitative Analysis of the Parental Experiences Related to Screening and (Re)habilitation Care for Children with Congenital Deafness in Flanders, Belgium-
dc.typeJournal Contribution-
dc.identifier.epage324-
dc.identifier.issue3-
dc.identifier.spage299-
dc.identifier.volume111-
local.bibliographicCitation.jcatA1-
dc.relation.referencesAnderson, L, Weichbold, V., D'Haese, P. S., Szuchnik, J., Quevedo, M. S., Martin, J., et al. (2004). Cochlear implantation in children under the age of two-what do the outcomes show us? International Journal of Pédiatrie Otorhinolaryngology, 68{4), 425-431. Arber, S. (2001). Designing samples. In N. Gilbert (Ed.), Researching social life (second edition) (pp. 58-84). London: Sage Publications Ltd. Baroch, K. A. (2003). Universal newborn hearing screening: Fine-tuning the process. Current Opinion in Otolaryngology & Head and Neck Surgery, 11(6), 424-^7. Beadle, E. A., McKinley, D. J., Nikolopoulos, T. P., Brough, J., O'Donoghue, G. M., & Archbold, S. M. (2005). Long-term functional outcomes and academic-occupational status in implanted children after 10 to 14 years of cochlear implant use. Otology and Neurotology, 26(6), 1152-1160. Brown, M., Bakar, Z. A., Rickards, F. W., & Griffin, P. (2006). Family functioning, early intervention support, and spoken language and placement outcomes for children with profound hearing loss. Deafness and Education International, 5(4), 207-226. Bunne, M. (1999). Qualitative research methods in otorhinolaryngology. International journal of Pediatric Otorhinolaryngology, 52(1), 1-10. Burger, T., Spahn, C, Richter, B., Eissele, S., Löhle, E., & Bengel, J. (2005). Parental distress: The initial phase of hearing aid and cochlear implant fitting. American Annals of the Deaf, 250(1), 5-10. Declau, F., Boudewyns, A., Van den Ende, J., Peeters, A., & Van de Heyning, P. (2008). Etiologic and audiologic evaluations after universal neonatal hearing screening: Analysis of 170 referred neonates. Pediatrics, 222(6), 1119-1126. Eisenberg, L. S., Johnson, K. C, Martinez, A. S., Cokely, C. G., Tobey, E. A., Quittner, A. L., et al. (2006). Speech recognition at 1-year follow-up in the childhood development after cochlear implantation study: Methods and preliminary findings. Audiology and Neuro-Otology, 22(4), 259-268. Fielding, J. (2001). Coding and managing data. In N. Gilbert (Ed.), Researching social life (second edition) (pp. 227-251). London: Sage Publications Ltd. Fisher, P., & Goodley, D. (2007). The linear medical model of disability: Mothers of disabled babies resist with counter-narratives. Sociology of Health and Illness, 29(1), 66-81. Fitzpatrick, E., Coyle, D. E., Durieux-Smith, A., Graham, 1. D., Angus, D. E., & Gaboury, 1. (2007). Parents' preferences for services for children with hearing loss: A conjoint analysis study. Ear and Hearing, 28{6), 842-849. Geers, A. E. (2004). Speech, language, and reading skills after early cochlear implantation. Archives of Otolaryngology-Head and Neck Surgery, 230(5), 634-638. Green, J., & Thorogood, N. (2004). Qualitative methods for health research. London: Sage Publications Ltd. Grill, E., Uus, K., Hessel, F., Davies, L., Taylor, R. S., Wasem, J., et al. (2006). Neonatal hearing screening: Modelling cost and effectiveness of hospital and community-based screening. BMC Health Services Research, 6,14. Hardonk, S., Bosteels, S., Desnerck, G., Loots, G., Van Hove, G., Van Kerschaver, E., et al. (2010a). Pédiatrie cochlear implantation: A qualitative study of the parental decision-making process in Flanders, Belgium. American Annals of the Deaf, 155(3), 339-362. Hardonk, S., Desnerck, G., Loots, G., Van Hove, G., Van Kerschaver, E., Sigurjónsdóttir, H. B., et al. (2010b). Congenitally deaf children's care trajectories in the context of universal neonatal hearing screening: A qualitative study of the parental experiences, journal of Deaf Studies and Deaf Education, 26(3), 305-324. Hardonk, et al. (2010c). Investigating congenitally deaf children's care trajectories: Development and implementation of a qualitative research methodology. Under review, Journal of Deaf Studies and Deaf Education. Incesulu, A., Vural, M., & Erkam, U. (2003). Children with cochlear implants: Parental perspective. Otology & Neurotology, 24, 605-611. Kerschner, J. E. (2004). Neonatal hearing screening: To do or not to do. Pediatric Clinics of North America, 52(3), 725-736. Kluwin, T., & Stewart, D. A. (2000). Cochlear implants for younger children: A preliminary description of the parental decision process and outcomes. American Annals of the Deaf 145(1), 26-32. Kurtzer-White, E., & Luterman, D. (2003). Families and children with hearing loss: Grief and coping. Mental Retardation and Developmental Disabilities Research Reviews, 9, 232-235. Lang, H. G. (2003). Perspectives on the history of deaf education. In M. Marschark & P. Spencer (Eds.), Deaf studies, language and education (pp. 9-20). New York: Oxford University Press. Lewins, A. (2001). Computer assisted qualitative data analysis. In N. Gilbert (Ed.), Researching social life (second edition) (pp. 302-323). London: Sage Publications Ltd. Luterman, D. (1985). The denial mechanism. Ear and Hearing, 6(1), 57-58. Maes, B., & Bruyninckx, W. (2003). Organisatie en implementatie van trajectbegeleiding voor personen met een handicap in Vlaanderen. (Onderzoek in opdracht van het Vlaams Fonds voor Sociale Integratie van Personen met een handicap.) Leuven, Belgium: K.U.Leuven, Centrum voor Orthopedagogiek. Maes, B., & Goffart, K. (2002). Case management for people with disabilities. Australian Journal of Case Management, 4(1), 3-8. Maes, B., Van Hove, G., Van Puyenbroeck, J., Van Der Veken, K., Van Driessche, C, & Boone, M. (2001). Een kader voor de organisatie van vraaggestuurde ondersteuning voor mensen met een handicap en hun omgeving. (Onderzoek in opdracht van het Vlaams Fonds voor Sociale Integratie van Personen met een Handicap). Leuven/Gent, Belgium: Vakgroepen Orthopedagogiek. Marschark, M., Rhoten, C, & Fabich, M. (2007). Effects of cochlear implants on children's reading and academic achievement. Journal of Deaf Studies and Deaf Education, 12(3), 269-282. McKellin, W. H. (1995). Hearing impaired families: The social ecology of hearing loss. Social Science and Medicine, 40(11), 1469-1180. Meadow, K. P. (1968). Parental response to the medical ambiguities of congenital deafness. Journal of Health and Social Behavior, 9(4), 299-309. Mehl, A. L., & Thomson, V. (2002). The Colorado newborn hearing screening project, 1992-1999: On the threshold of effective population-based universal newborn hearing screening. Pediatrics, 109(1), E7. Mezzano, P., Serra, G., & Calevo, M. G. (2009). Cost analysis of an Italian neonatal hearing screening programme. Journal of Maternal-Fetal and Neonatal Medicine, 11,1-6. Miller, J. & Glassner, B. (2004). The "inside" and "outside": Finding realities in interviews. In D. Silverman (Ed.), Qualitative research. Theory, method and practice (pp. 125-139). London: Sage Publications Ltd. Nelson, H. D., Bougatsos, C, & Nygren, P. (2008). Universal newborn hearing screening: Systematic review to update the 2001 U.S. Preventive Services Task Force Recommendation. Pediatrics, 222(1), e266-276. Neumann, K., Gross, M., Böttcher, P., Euler, H. A., Spormarm-Lagodzinski, M., & Polzer, M. (2006). Effectiveness and efficiency of a universal newbom hearing screening in Germany. Folia Phoniatrica et Logopaedica, 58(6), 440-455. Okubo, S., Takahashi, M., & Kai, I. (2008). How Japanese parents of deaf children arrive at decisions regarding pédiatrie cochlear implantation surgery: A qualitative study. Social Science and Medicine, 66, 2436-2447. Patton, M. Q. (2002). Qualitative research and evaluation methods (3th edition). London: Sage Publications Ltd. QSR. (2006). NVivo 7: Software for qualitative data analysis. Australia: QSR International Pty Ltd. Raveh, E., BuUer, N., Badrana, Q., & Attias, J. (2007). Auditory neuropathy: Clinical characteristics and therapeutic approach. American journal ofOtolaryngology, 28(5), 302-308. Silverman, D. (1993). Interpreting qualitative data. Methods for analysing talk, text and interaction. London: Sage Publications Ltd. Storbeck, C, & Pittman, P. (2008). Early intervention in South Africa: Moving beyond hearing screening. International journal of Audiology, 47(Suppl 1), S36-43. Strauss, A. L., Fagerhaugh, S., Suczek, B., & Wiener, C. (1997). Social organization of medical work. New Brunswick, N.J.: Transaction Publishers. Thompson, D. C, McPhillips, H., Davis, R. L., Lieu, T. L., Homer, C. J., & Helfand, M. (2001). Universal newborn hearing screening: Summary of evidence. Journal of the American Medical Association, 286(16), 2000-2010. Uilenburg, N., Kauffman-de Boer, M., van der Ploeg, K., Oudesluys-Murphy, A. M., & Verkerk, P. (2009). An implementation study of neonatal hearing screening in the Netherlands. International journal of Audiology, 48(3), 108-116. Van Kerschaver, E., Boudewyns, A. N., Stappaerts, L., Wuyts, F. L., & Van de Heyning, P. H. (2007). Organisation of a universal newborn hearing screening programme in Flanders. B-ENT, 3(4), 185-190. Van Kerschaver, E., & Stappaerts, L. (2000). Algo Hearing Screening, report for 1999. Brussels: Kind en Gezin. Van Kerschaver, E., & Stappaerts, L. (2001). Algo Hearing Screening, report for 2000. Brussels: Kind en Gezin. Van Kerschaver, E., & Stappaerts, L. (2003). Algo gehoorscreening: rapport van de werkjaren 2001 & 2002. Brussels: Kind en Gezin. Verhaert, N., Willems, M., Van Kerschaver, E., & Desloovere, C. (2008). Impact of early hearing screening and treatment on language development and education level: Evaluation of 6 years of universal newborn hearing screening (ALGO) in Flanders, Belgium. International Journal of Pediatric Otorhinolaryngology, 72(5), 599-608. Young, A., & Andrews, E. (2001). Parents' experience of universal neonatal hearing screening: A critical review of the literature and its implications for the implementation of new UNHS programs. Journal of Deaf Studies and Deaf Education, 6(3), 149-160. Young, A., & Tattersall, H. (2005). Parents' of deaf children evaluative accounts of the process and practice of universal newborn hearing screening. Journal of Deaf Studies and Deaf Education, 10(2), 134-145. Young, A., & Tattersall, H. (2007). Universal newborn hearing screening and early identification of deafness: Parents' responses to knowing early and their expectations of child communication development. Journal of Deaf Studies and Deaf Education, 12(2), 209-220.-
local.type.refereedRefereed-
local.type.specifiedArticle-
dc.bibliographicCitation.oldjcatA1-
item.contributorLoots, Gerrit-
item.contributorHARDONK, Stefan-
item.contributorMatthijs, Liesbeth-
item.contributorLouckx, Fred-
item.contributorVanroelen, Christophe-
item.contributorVan Kerschaver, Erwin-
item.contributorVan Hove, Geert-
item.contributorSigurjónsdóttir, Hanna Björg-
item.contributorDesnerck, Greetje-
item.fulltextNo Fulltext-
item.fullcitationHARDONK, Stefan; Desnerck, Greetje; Loots, Gerrit; Matthijs, Liesbeth; Van Hove, Geert; Van Kerschaver, Erwin; Sigurjónsdóttir, Hanna Björg; Vanroelen, Christophe & Louckx, Fred (2011) From Screening to Care: A Qualitative Analysis of the Parental Experiences Related to Screening and (Re)habilitation Care for Children with Congenital Deafness in Flanders, Belgium. In: VOLTA REVIEW, 111 (3), p. 299-324.-
item.accessRightsClosed Access-
crisitem.journal.issn0042-8639-
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