Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/18416
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dc.contributor.authorCALSIUS, Joeri-
dc.contributor.authorCOURTOIS, Imke-
dc.contributor.authorFEYS, Peter-
dc.contributor.authorVAN ASCH, Paul-
dc.contributor.authorDe Bie, Jozef-
dc.contributor.authorD'Hooghe, Marie-
dc.date.accessioned2015-03-23T07:36:28Z-
dc.date.available2015-03-23T07:36:28Z-
dc.date.issued2015-
dc.identifier.citationDisability and rehabilitation, 37 (26), pag. 2393-2399-
dc.identifier.issn0963-8288-
dc.identifier.urihttp://hdl.handle.net/1942/18416-
dc.description.abstractBACKGROUND: People with multiple sclerosis (MS) frequently complain of chronic or fluctuating fatigue, sometimes accompanied by pain. From a phenomenological point of view, both fatigue and pain are seen as aspects of suffering which adversely affect the physical, psychological, social and even existential dimensions of the individual life. OBJECTIVE: The present study discusses changes in identity and body awareness in people with MS who completed a five-day trekking to Machu Picchu in Peru in 2012, after having followed a physical training schedule for several months. METHOD AND DESIGN: All nine participants took part in a focus group organized after the trip. The Interpretative Phenomenological Analysis (IPA) was used to gain insight in their experiences and to refine pre-existing theoretical understanding of body awareness and identity. RESULTS: Our phenomenological analysis clarified how aspects of the participants’ identity- and body experience before, during and after the journey influenced major daily themes as ‘body’, ‘lived body’, ‘behavior’ and ‘relationship’ and how this contributed to a meaningful experience. When participants describe how they started looking at their own identity more consciously after being watched through the others’ eyes, this resulted in a joyful transcending of their bodily power and endurance. In general, our data suggest that the more extreme, positive lived body experiences during the expedition were necessary for optimizing daily ‘routine’ functioning. CONCLUSION: Participating to the Macchu-Pichu expedition appeared to have a deep and profound effect on body awareness and identity. Participants experienced their body once again as theirs, owning it and above all, allowing it to be a source of strength, joy and meaningfulness. While MS determined their lives prior to the journey, they now could look at MS as a part of what they are, without totally being absorbed in it. So being a patient with MS before, resulted in merely having MS after the climb.-
dc.language.isoen-
dc.rights© 2015 Informa UK Ltd.-
dc.subject.otherbody experience; identity; lived body; multiple sclerosis; phenomenological analysis-
dc.title‘‘How to conquer a mountain with multiple sclerosis’’. How a climbing expedition to Machu Picchu affects the way people with multiple sclerosis experience their body and identity: a phenomenological analysis-
dc.typeJournal Contribution-
dc.identifier.epage2399-
dc.identifier.issue26-
dc.identifier.spage2393-
dc.identifier.volume37-
local.format.pages7-
local.bibliographicCitation.jcatA1-
dc.description.notesAddress for correspondence: Joeri Calsius, REVAL – Rehabilitation Research Center, BIOMED – Biomedical Research Center, Faculty of Medicine and Life Sciences, Hasselt University, Diepenbeek, Belgium. Tel: 0032 476 545128. E-mail: joeri.calsius@uhasselt.be-
dc.relation.referencesReference List 1. Solaro C., Tanganelli P., Messmer Uccelli M. Pharmacological treatment of pain in multiple sclerosis. Expert Rev Neurother 2007;7(9):1165-74. 2. Söderberg S., Lundman B., Norberg A. The meaning of fatigue and tiredness as narrated by women with fibromyalgia and healty women. J Clin Nurs. 2002 Mar;11(2):247-55 3. Grytten N., Maseide P. What is expressed is not always what is felt: coping with stigma and the embodiment of perceived illegitimacy of multiple sclerosis. Chronic Illness, 2005 1, 231-243 4. Snook E.M. , R.W. Motl Effect of exercise training on walking mobility in multiple sclerosis: a meta-analysis. Neurorehabil Neural Repair, 2009. 23(2): p. 108-16. 5. Motl R.W. , J.L. Gosney Effect of exercise training on quality of life in multiple sclerosis: a meta-analysis. Mult Scler, 2008. 14(1): p. 129-35. 6. McCullagh R. Long-term benefits of exercising on quality of life and fatigue in multiple sclerosis patients with mild disability: a pilot study. Clin Rehabil, 2008. 22(3): p. 206-14. 7. Dalgas U., Stenager E., Ingemann-Hansen T. Multiple sclerosis and physical exercise: recommendations for the application of resistance-, endurance- and combined training. Mult Scler 2008;14(1):35-53. 8. Dalgas U., Stenager E., Jakobsen J., Petersen T., Hansen HJ., Knudsen C. Resistance training improves muscle strength and functional capacity in multiple sclerosis. Neurology 2009 Nov 3;73(18):1478-84. 9. Dalgas U., Stenager E., Jakobsen J., Petersen T., Hansen HJ., Knudsen C. Fatigue, mood and quality of life improve in MS patients after progressive resistance training. Mult Scler 2010 Apr;16(4):480-90. 10. Broekmans T., Roelants M., Feys P., Alders G., Gijbels D., Hanssen I., et al. Effects of long-term resistance training and simultaneous electro-stimulation on muscle strength and functional mobility in multiple sclerosis. Mult Scler 2011 Apr;17(4):468-77. 11. Stroud N.M., Minahan CL. The impact of regular physical activity on fatigue, depression and quality of life in persons with multiple sclerosis. Health Qual Life Outcomes 2009;7:68. 12. Stroud N., Minahan C., Sabapathy S. The perceived benefits and barriers to exercise participation in persons with multiple sclerosis . Disabil Rehabil 2009 May 21;1-7. 13. Tallner A., Waschbisch A., Wenny I., Schwab S., Hentschke C., Pfeifer K., Mäurer M. Multiple sclerosis relapses are not associated with exercise. Mult Scler, 2011: 0(00); 1 - 4 14. Smith C., Olson K., Hale LA., Baxter D., Schneiders AG. How does fatigue influence community-based exercise participation in people with multiple sclerosis? Disabil Rehabil 2011: 1 - 10 15. Smith C., Hale L., Olson K., Schneiders AG. How does exercise influence fatigue in people with multiple sclerosis? Disabil Rehabil 2009;31(9):685-92. 16. Hale LA., Smith C., Mulligan H., Treharne GJ. Tell me what you want, what you really really want…: asking people with multiple sclerosis about enhancing their participation in physical activity. Disabil Rehabil 2012: 1 - 7 17. Motl R.W., McAuley E., Snook E.M.. Physical activity and multiple sclerosis: a meta-analysis. Mult Scler 2005;11(4):459-63. 18. Williams Reade, J., White M.B., White C.P., Russell C.S. (2012). What would you say? Expressing the difficulties of living with MS. Journal of Neuroscience Nursing, 44(1), 54-63. 19. De Haan S. Fenomenologie van de lichaamservaring. In: Denys D., Meynen G. (red.) (2012) Handboek Psychiatrie en Filosofie. Utrecht: De Tijdstroom 20. Mehling, W. E., Wrubel, J., Daubenmier, J.J., Price, C.J., Kerr, C.E., Silow, T., Body awareness: a phenomenological inquiry into the common ground of mind-body therapies. Philos. Ethics Humanit. Med. 6 (2011): 6. 21. Mehling, W. E., Gopisetty, V., Daubenmier, J., Price, C.J., Hecht, F.M., Stewart, A. Body awareness: construct and self-report measures. PLoS.One. 2009 4-5 22. Fogel, A. Embodied awareness: neither implicit nor explicit and not necessarily nonverbal. Child Dev Perspect. 5.3 (2011): 183-86 23. Fogel, A. (2009). The psychophysiology of self-awareness. New York: W.W. Norton 24. Price, M.J. Exploration of body listening: Health and physical self-awareness in chronic illness. Advanced Nurse Science, 1993 15(4), 37-52 25. Stanghellini G. Embodiment and schizophrenia. (2009) World Psych, 8(1), 56-9. 26. Zeiler, K. A phenomenological analysis of bodily self-awareness in the experience of pain and pleasure: on dys-appearance and eu-appearance. Med Health Care and Philos. 2010 13:333-342 27. Bullington, J. Embodiment and chronic pain: implications for rehabilitation practice. Health Care Anal. 17.2 (2009): 100-09 28. Fuchs, T., Schlimme, J.E. Embodiment and psychopathology: a phenomenological perspective. Curr Opinion Psychiatry. 22.6 (2009): 570-5. 29. Gyllensten, A.L., Skär, L., Miller M., Gard, G. Embodied identity a deeper understanding of body awareness. Physiother Theory Pract. 26.7 (2010): 439-46. 30. Gard, G. Body awareness therapy for patients with fibromyalgia and chronic pain. Disability and Rehabilitation. (2005) 27(12),725-728 31. Taylor, C. (2008). Merleau-Ponty. London/New-York: Routledge Philosophers 32. Gendlin, E.T. Focusing. Psychotherapy: Theory, Research and Practice. 1969 6(1), 4-15. Retrieved from http://www.focusing.org/gendlin/docs/gol_2048.html. 33. Gendlin, E.T. Three Assertions about the Body. 1993 The Folio. 12(1), 21-33. Retrieved from http://www.focusing.org/gendlin/docs/gol_2064.html 34. Blaskeslee, S., Blakeslee, M. (2007). The body has a mind of its own. United States: The Random House Trade Paperbacks. 35. Lakoff G., Johnson, M. (2003). Methaphors we live by. Chicago: University Of Chicago Press 36. Jirak, D., Menz, M.M., Buccino, G., Borghi, A.M., Binkofski, F.. Grasping language. A short story on embodiment. (2010) Consciousness and Cognition 19, 711-720 37. Damasio, A. (1999). The feeling of what happens. Body and emotion in the making of consciousness. Florida: Hartcourt Books. 38. Damasio, A. (2003). Looking for Spinoza. Joy, sorrow and the feeling brain. Florida: Hartcourt Books 39. Craig AD: Significance of the insula for the evolution of human awareness of feelings from the body. Ann N Y Acad Sci 2011;1225:72-82. 40. Herbert BM, Pollatos O: The body in the mind: on the relationship between interoception and embodiment. Top Cogn Sci 2012;4:692-704. 41. Van Asch P, T.K., de Groote L, O. Eijnde B, Feys P, "MovetoSport" in Belgium: an organizational model to facilitate skilled guidance of persons with multile sclerosis during exercise and sport in the community. Neurol & Rehabil 2013. 19(1): p. 56-60. 42. D'hooghe MB., Feys P., Deltour S., Van de Putte I., De Meue J., Kos D. et al. Impact of a 5-day expedition to Machu Picchu on persons with multiple sclerosis. Multiple Sclerosis International 2014;2014:761210. Epub 2014/06/27 43. Howitt, D. (2013). Introduction to Qualitative Methods in Psychology. London: Pearson-
local.type.refereedRefereed-
local.type.specifiedArticle-
dc.identifier.doi10.3109/09638288.2015.1027003-
dc.identifier.isi000369887200002-
item.fullcitationCALSIUS, Joeri; COURTOIS, Imke; FEYS, Peter; VAN ASCH, Paul; De Bie, Jozef & D'Hooghe, Marie (2015) ‘‘How to conquer a mountain with multiple sclerosis’’. How a climbing expedition to Machu Picchu affects the way people with multiple sclerosis experience their body and identity: a phenomenological analysis. In: Disability and rehabilitation, 37 (26), pag. 2393-2399.-
item.validationecoom 2017-
item.contributorCALSIUS, Joeri-
item.contributorCOURTOIS, Imke-
item.contributorFEYS, Peter-
item.contributorVAN ASCH, Paul-
item.contributorDe Bie, Jozef-
item.contributorD'Hooghe, Marie-
item.fulltextWith Fulltext-
item.accessRightsRestricted Access-
crisitem.journal.issn0963-8288-
crisitem.journal.eissn1464-5165-
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