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Title: Qualitative research on the Belgian Cancer Rehabilitation Evaluation System (CARES): An evaluation of the content validity and feasibility
Authors: SCHOUTEN, Bojoura 
Vankrunkelsven, Patrick
MEBIS, Jeroen 
Buntinx, Frank
VANDIJCK, Dominique 
Van Hoof, Elke
Issue Date: 2017
Publisher: WILEY
Abstract: Rationale, aims, and objectives The systematic assessment of cancer patients well-being and care needs is internationally recommended to optimize comprehensive cancer care. The Cancer Rehabilitation Evaluation System (CARES) is a psychometrically robust quality of life and needs assessment tool of US origin, developed in the early 1990s. This article describes Belgian patients' view on the content validity and feasibility of the CARES for use in current cancer care. Methods Participants were cancer patients recruited through media. Data were gathered in 4 focus groups (n = 26). The focus group discussions were facilitated with key questions. A moderator and an observer conducted and followed up the discussion. The audio file was transcribed verbatim and afterwards analyzed thematically. Results Participants experience concerns and needs in a wide range of life domains such as physical, emotional, cognitive, social, relational, sexual, financial, and work-related and in the interaction with care professionals. According to participants, the items of the CARES are all relevant to capture the possible life disruption that cancer patients and survivors experience. One important theme is missing in the CARES, namely, the well-being of loved ones. The completion time of the CARES was judged to be feasible, and according to participants, only a few items need a reformulation. Conclusions In general, the results of this study support the content validity and feasibility of the CARES. However, little adjustments in formulation and a few extra items are needed. The instrument can be used to obtain a comprehensive assessment of a cancer patients' overall well-being and care needs to take dedicated action in care.
Notes: [Schouten, Bojoura; Hellings, Johan; Mebis, Jeroen; Vandijck, Dominique] Hasselt Univ, Fac Med & Life Sci, Martelarenlaan 42, B-3500 Hasselt, Belgium. [Schouten, Bojoura] Free Univ Brussels, Fac Psychol & Educ Sci, Pl Laan 2, B-1050 Elsene, Belgium. [Hellings, Johan] AZ Delta Hosp, B-8800 Roeselare, Belgium. [Vankrunkelsven, Patrick; Buntinx, Frank] Katholieke Univ Leuven, Fac Med, Dept Publ Hlth & Primary Care, Leuven, Belgium. [Vankrunkelsven, Patrick] Belgian Ctr Evidence Based Med CEBAM, Leuven, Belgium. [Mebis, Jeroen; Bulens, Paul] Jessa Hosp, Hasselt, Belgium. [Vandijck, Dominique] Univ Ghent, Fac Med & Hlth Sci, Ghent, Belgium. [Vandijck, Dominique] ICURO, Brussels, Belgium. [Van Hoof, Elke] Free Univ Brussels, Fac Psychol & Educ Sci, Dept Expt & Appl Psychol, Elsene, Belgium.
Keywords: assessment; cancer; care needs; patient-centeredness; quality of life;assessment; cancer; care needs; patient‐centeredness; quality of life
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ISSN: 1356-1294
e-ISSN: 1365-2753
DOI: 10.1111/jep.12681
ISI #: 000405212600019
Rights: © 2017 John Wiley & Sons, Ltd.
Category: A1
Type: Journal Contribution
Validations: ecoom 2018
Appears in Collections:Research publications

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