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http://hdl.handle.net/1942/27190
Title: | Bridging Patients’ Needs and Caregivers’ Perspectives to Tailor Information Provisioning during Cardiac Rehabilitation | Authors: | SANKARAN, Supraja BONNEUX, Cindel DENDALE, Paul CONINX, Karin |
Issue Date: | 2018 | Source: | Proceedings of the 32nd International BCS Human Computer Interaction Conference (HCI 2018) | Series/Report: | The eWiC Series | Abstract: | In remote rehabilitation of cardiac patients, patients need a better understanding of various factors influencing their disease condition to become active participants in their care. Nonetheless, current e-learning approaches in healthcare lack personalization and a deeper understanding of individual patient needs. Most e-learning platforms in healthcare are merely an accumulation of content created by caregivers where patients have no means to seek tailored information to suit specific personal needs. This forms a barrier in patient understanding, debilitating them from becoming active stakeholders in their rehabilitation progress. We identify pitfalls in current approaches and gaps in information needs of patients and caregivers’ perspectives from literature. We organized two workshops - (i) with various professional caregivers involved in coaching cardiac patients, and (ii) with cardiac patients and their informal caregivers - to bridge caregivers’ perspectives with patients’ needs. Further, we prototyped and evaluated two tools to support shared decision making of information needs based on outcomes synthesized from the two workshops. In this paper, we discuss results of the workshops and prototype evaluations. Finally, we discuss how this shared decision making approach supports patient understanding and improves their adherence to rehabilitation goals. | Keywords: | patient-centered computing; e-learning; shared decision making; cardiac rehabilitation | Document URI: | http://hdl.handle.net/1942/27190 | DOI: | 10.14236/ewic/HCI2018.49 | Rights: | © 2018, Supraja Sankaran et al. | Category: | C1 | Type: | Proceedings Paper | Validations: | vabb 2020 |
Appears in Collections: | Research publications |
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File | Description | Size | Format | |
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BHCI-2018_paper_148.pdf | Published version | 1.39 MB | Adobe PDF | View/Open |
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