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Title: | The European Renal Association - European Dialysis and Transplant Association Registry Annual Report 2014: a summary | Authors: | Pippias, Maria Kramer, Anneke Noordzij, Marlies Afentakis, Nikolaos Alonso de la Torre, Ramon Ambuhl, Patrice M. Aparicio Madre, Manuel I. Arribas Monzon, Felipe Asberg, Anders Bonthuis, Marjolein Bouzas, Encarnacion Bubic, Ivan Caskey, Fergus J. de la Nuez, Pablo Castro Cernevskis, Harijs Garcia Bazaga, Maria de los Angeles des Grottes, Jean-Marin Fernandez Gonzalez, Raquel Ferrer-Alamar, Manuel Finne, Patrik Garneata, Liliana Golan, Eliezer Heaf, James G. Hemmelder, Marc H. Idrizi, Alma Ioannou, Kyriakos Jarraya, Faical Kantaria, Nino Kolesnyk, Mykola Kramar, Reinhard Lassalle, MathilDe Lezaic, Visnja V. Lopot, Frantisek Macario, Fernando Magaz, Angela de Francisco, Angel L. Martin Martin Escobar, Eduardo Martinez Castelao, Alberto Metcalfe, Wendy Moreno Alia, Inmaculada Nordio, Maurizio Ots-Rosenberg, Mai Palsson, Runolfur Ratkovic, Marina Resic, Halima Rutkowski, Boleslaw de Pablos, Carmen Santiuste Seyahi, Nurhan Roblero, Maria Fernanda Slon Spustova, Viera STAS, Koenraad Stendahl, Maria E. Stojceva-Taneva, Olivera Vazelov, Evgueniy Ziginskiene, Edita Massy, Ziad Jager, Kitty J. Stel, Vianda S. |
Issue Date: | 2017 | Publisher: | OXFORD UNIV PRESS | Source: | CLINICAL KIDNEY JOURNAL, 10(2), p. 154-169 | Abstract: | Background: This article summarizes the European Renal Association - European Dialysis and Transplant Association Registry's 2014 annual report. It describes the epidemiology of renal replacement therapy (RRT) for end-stage renal disease (ESRD) in 2014 within 35 countries. Methods: In 2016, the ERA-EDTA Registry received data on patients who in 2014 where undergoing RRT for ESRD, from 51 national or regional renal registries. Thirty-two registries provided individual patient level data and 19 provided aggregated patient level data. The incidence, prevalence and survival probabilities of these patients were determined. Results: In 2014, 70 953 individuals commenced RRT for ESRD, equating to an overall unadjusted incidence rate of 133 per million population (pmp). The incidence ranged by 10-fold; from 23 pmp in the Ukraine to 237 pmp in Portugal. Of the patients commencing RRT, almost two-thirds were men, over half were aged >= 65 years and a quarter had diabetes mellitus as their primary renal diagnosis. By day 91 of commencing RRT, 81% of patients were receiving haemodialysis. On 31 December 2014, 490 743 individuals were receiving RRT for ESRD, equating to an unadjusted prevalence of 924 pmp. This ranged throughout Europe by more than 10-fold, from 157 pmp in the Ukraine to 1794 pmp in Portugal. In 2014, 19 406 kidney transplantations were performed, equating to an overall unadjusted transplant rate of 36 pmp. Again this varied considerably throughout Europe. For patients commencing RRT during 2005-09, the 5-year-adjusted patient survival probabilities on all RRT modalities was 63.3% (95% confidence interval 63.0-63.6). The expected remaining lifetime of a 20-to 24-year-old patient with ESRD receiving dialysis or living with a kidney transplant was 21.9 and 44.0 years, respectively. This was substantially lower than the 61.8 years of expected remaining lifetime of a 20-year-old patient without ESRD. | Notes: | [Pippias, Maria; Kramer, Anneke; Noordzij, Marlies; Jager, Kitty J.; Stel, Vianda S.] Univ Amsterdam, Acad Med Ctr, Dept Med Informat, ERA EDTA Registry, Amsterdam, Netherlands. [Afentakis, Nikolaos] Gen Hosp Athens G Gennimatas, Board Registry Coordinat & Control RRT, Hellen Renal Registry, Athens, Greece. [Alonso de la Torre, Ramon] Publ Hlth Directorate, Asturias, Spain. [Ambuhl, Patrice M.] Stadtspital Waid, Div Renal, Swiss Dialysis Registry, Zurich, Switzerland. [Aparicio Madre, Manuel I.] Oficina Reg Coordinac Trasplantes, Registro Madrile Enfermos Renales REMER, Madrid, Spain. [Arribas Monzon, Felipe] Aragon Renal Registry Coordinac Trasplantes Arago, Zaragoza, Spain. [Asberg, Anders] Natl Hosp Norway, Oslo Univ Hosp, Dept Transplant Med, Norwegian Renal Registry, Oslo, Norway. [Bonthuis, Marjolein] Univ Amsterdam, Acad Med Ctr, Dept Med Informat, ESPN ERA EDTA Registry, Amsterdam, Netherlands. [Bouzas, Encarnacion] Reg Transplant Coordinat Off, Galicia, Spain. [Bubic, Ivan] Univ Rijeka, Sch Med, Clin Hosp Ctr Rijeka, Dept Internal Med, Rijeka, Croatia. [Caskey, Fergus J.] Southmead Hosp, UK Renal Registry Learning & Res, Bristol, Avon, England. [de la Nuez, Pablo Castro] Informat Syst Reg Transplant Coordinat Andaluci S, Andalucia, Spain. [Cernevskis, Harijs] Riga Stradins Univ, Dept Internal Med, Riga, Latvia. [Garcia Bazaga, Maria de los Angeles] Consejeria Sanidad Polit Sociales, Serv Extreme Salud, Direcc Gen Salud Publ, Junta De Extremadura, Caceres, Spain. [des Grottes, Jean-Marin] CHU Tivoli, La Louviere, Belgium. [Fernandez Gonzalez, Raquel] Registro Enfermos Renales Castilla & Leon, Coordinac Trasplantes, Castilla, Spain. [Fernandez Gonzalez, Raquel] Registro Enfermos Renales Castilla & Leon, Coordinac Trasplantes, Leon, Spain. [Ferrer-Alamar, Manuel] Tecn Registro Enfermos Renales Comunitat Valencia, Serv Estudios Epidemiol & Registros Sanitarios, Subdirecc Gen Epidemiol, Direcc Gen Salut Publ, Valencia, Spain. [Finne, Patrik] Univ Helsinki, Cent Hosp, Dept Nephrol, Helsinki, Finland. [Finne, Patrik] Finnish Registry Kidney Dis, Helsinki, Finland. [Garneata, Liliana] Carol Davila Univ Med & Pharm, Dr Carol Davila Teaching Hosp Nephrol, Dept Internal Med & Nephrol, Bucharest, Romania. [Golan, Eliezer] Kfar Saba & Sackler Fac Med, Meir Med Ctr, Dept Nephrol & Hypertens, Tel Aviv, Israel. [Heaf, James G.] Zealand Univ Hosp, Dept Med, Roskilde, Denmark. [Hemmelder, Marc H.] Dutch Renal Registry Renine, Utrecht, Netherlands. [Idrizi, Alma] UHC Mother Teresa, Serv Nephrol, Tirana, Albania. [Ioannou, Kyriakos] Nicosia Gen Hosp, Nephrol Dept, Nicosia, Cyprus. [Jarraya, Faical] Sfax Univ, Fac Med, Res Unit 12ES14, Sfax, Tunisia. [Jarraya, Faical] Hedi Chaker Univ Hosp, Sfax, Tunisia. [Kantaria, Nino] Tbilisi State Med Univ, Dept Internal Med, Tbilisi, Georgia. [Kolesnyk, Mykola] Natl Acad Med Sci Ukraine, Main Coordinator Natl Register CKD & AKI Patients, State Inst Nephrol, Kiev, Ukraine. [Kramar, Reinhard] Austrian Dialysis & Transplant Registry, Rohr, Austria. [Lassalle, MathilDe] REIN Registry, Agence Biomed, Paris, France. [Lezaic, Visnja V.] Clin Ctr Serbia, Dept Nephrol, Belgrade, Serbia. [Lopot, Frantisek] Gen Univ Hosp, Dept Med, Strahov, Czech Republic. [Lopot, Frantisek] 1st Charles Univ Sch, Sch Med, Strahov, Czech Republic. [Macario, Fernando] Univ Hosp Coimbra, Portuguese Soc Nephrol, Nephrol Dept, Coimbra, Portugal. [Magaz, Angela] Unidad Informac Pacientes Renales Comunidad Auton, Basque, Spain. [de Francisco, Angel L. Martin] Hosp Univ Valdecilla, Serv Nefrol, Santander, Cantabria, Spain. [Martin Escobar, Eduardo] Organizac Nacl Trasplantes, REER, Madrid, Spain. [Martinez Castelao, Alberto] Hosp Univ Bellvitge, Catalan Renal Registry Comm, Barcelona, Spain. [Metcalfe, Wendy] ISD Scotland, Scottish Renal Registry, Meridian Court, Glasgow, Lanark, Scotland. [Moreno Alia, Inmaculada] Direcc Gen Salud Publ Consumo Castilla La Mancha, Serv Epidemiol, Registro Enfermos Renales Tratamiento Sustitut Ca, Toledo, Spain. [Nordio, Maurizio] Nephrol & Dialysis Unit, AULSS 15, Veneto, Italy. [Ots-Rosenberg, Mai] Univ Tartu, Inst Clin Med, Fac Med, Dept Internal Med, Tartu, Estonia. [Palsson, Runolfur] Natl Univ Hosp Iceland, Div Nephrol Landspitali, Reykjavik, Iceland. [Ratkovic, Marina] Clin Ctr Montenegro, Nephrol & Hemodialysis Dept, Ljubljanska, Montenegro. [Resic, Halima] Univ Sarajevo, Ctr Clin, Head Clin Hemodialysis, Sarajevo, Bosnia & Herceg. [Rutkowski, Boleslaw] Med Univ, Dept Nephrol Transplantol & Internal Med, Polish Renal Registry, Gdansk, Poland. [de Pablos, Carmen Santiuste] IMIB Arrixaca, Serv Epidemiol, Registro Enfermos Renales Reg Murcia, Murcia, Spain. [Seyahi, Nurhan] Istanbul Univ, Div Nephrol, Cerrahpasa Med Fac, Dept Internal Med, Istanbul, Turkey. [Roblero, Maria Fernanda Slon] Complejo Hosp Navarra, Navarra, Spain. [Spustova, Viera] Slovak Med Univ, Bratislava, Slovakia. [Stas, Koenraad J. F.] Jessa Ziekenhuis, Dienst Nefrol, Campus Virga Jesse, Hasselt, Belgium. [Stendahl, Maria E.] Ryhov Cty Hosp, Dept Med, Swedish Renal Registry, Jonkoping, Sweden. [Stojceva-Taneva, Olivera] Univ Clin Nephrol, Med Fac Skopje, Skopje, Macedonia. [Vazelov, Evgueniy] Med Univ Sofia, Alexandrovska Univ Hosp, Dialysis Clin, Sofia, Bulgaria. [Ziginskiene, Edita] Lithuanian Nephrol Dialysis & Transplantat Assoc, Kaunas, Lithuania. [Ziginskiene, Edita] Lithuanian Univ Hlth Sci, Med Acad, Dept Nephrol, Kaunas, Lithuania. [Ziginskiene, Edita] Lithuanian Univ Hlth Sci, Kaunas Clin, Nephrol Clin, Hosp Lithuanian, Kaunas, Lithuania. [Massy, Ziad] Ambroise Pare Univ Hosp, Div Nephrol, APHP, Boulogne Billancourt, France. [Massy, Ziad] CESP UVSQ, Team 5, INSERM, INSERM U1018, Villejuif, France. [Massy, Ziad] Univ Paris Saclay, Villejuif, France. | Keywords: | dialysis; epidemiology; ESRD; kidney transplantation; survival analysis | Document URI: | http://hdl.handle.net/1942/28615 | ISSN: | 1753-0784 | DOI: | 10.1093/ckj/sfw135 | ISI #: | 000413787300003 | Rights: | The Author 2017. Published by Oxford University Press on behalf of ERA-EDTA. This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/ licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com 154 | Category: | A1 | Type: | Journal Contribution |
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