Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/32545
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dc.contributor.authorPEETERS, Liesbet-
dc.contributor.authorPARCIAK, Tina-
dc.contributor.authorWalton, Clare-
dc.contributor.authorGEYS, Lotte-
dc.contributor.authorMoreau, Yves-
dc.contributor.authorDE BROUWER, Edward-
dc.contributor.authorRaimondi, Daniele-
dc.contributor.authorPIRMANI, Ashkan-
dc.contributor.authorKalincik, Tomas-
dc.contributor.authorEdan, Gilles-
dc.contributor.authorSimpson-Yap, Steve-
dc.contributor.authorDE RAEDT, Sylvie-
dc.contributor.authorDauxais, Yann-
dc.contributor.authorGautrais, Clement-
dc.contributor.authorRodrigues, Paulo R.-
dc.contributor.authorMcKenna, Landon-
dc.contributor.authorLazovski, Nikola-
dc.contributor.authorHillert, Jan-
dc.contributor.authorForsberg, Lars-
dc.contributor.authorSPELMANS, Nele-
dc.contributor.authorMcBurney, Robert-
dc.contributor.authorSchmidt, Hollie-
dc.contributor.authorBergmann, Arnfin-
dc.contributor.authorBraune, Stefan-
dc.contributor.authorStahmann, Alexander-
dc.contributor.authorMiddleton, Rodden-
dc.contributor.authorSalter, Amber-
dc.contributor.authorBebo, Bruce F.-
dc.contributor.authorRojas, Juan, I-
dc.contributor.authorvan der Walt, Anneke-
dc.contributor.authorButzkueven, Helmut-
dc.contributor.authorvan der Mei, Ingrid-
dc.contributor.authorIvanov, Rumen-
dc.contributor.authorHellwig, Kerstin-
dc.contributor.authordo Olival, Guilherme Sciascia-
dc.contributor.authorCohen, Jeffrey A.-
dc.contributor.authorVan Hecke, Wim-
dc.contributor.authorDobson, Ruth-
dc.contributor.authorMagyari, Melinda-
dc.contributor.authorBrum, Doralina Guimaraes-
dc.contributor.authorAlonso, Ricardo-
dc.contributor.authorNicholas, Richard-
dc.contributor.authorBauer, Johana-
dc.contributor.authorChertcoff, Anibal-
dc.contributor.authorde Seze, Jerome-
dc.contributor.authorLouapre, Celine-
dc.contributor.authorComi, Giancarlo-
dc.contributor.authorRijke, Nick-
dc.date.accessioned2020-10-28T14:20:45Z-
dc.date.available2020-10-28T14:20:45Z-
dc.date.issued2020-
dc.date.submitted2020-09-09T12:47:53Z-
dc.identifier.citationMULTIPLE SCLEROSIS JOURNAL, 26 (10) , p. 1157 -1162-
dc.identifier.urihttp://hdl.handle.net/1942/32545-
dc.description.abstractBackground: We need high-quality data to assess the determinants for COVID-19 severity in people with MS (PwMS). Several studies have recently emerged but there is great benefit in aligning data collection efforts at a global scale. Objectives: Our mission is to scale-up COVID-19 data collection efforts and provide the MS community with data-driven insights as soon as possible. Methods: Numerous stakeholders were brought together. Small dedicated interdisciplinary task forces were created to speed-up the formulation of the study design and work plan. First step was to agree upon a COVID-19 MS core data set. Second, we worked on providing a user-friendly and rapid pipeline to share COVID-19 data at a global scale. Results: The COVID-19 MS core data set was agreed within 48 hours. To date, 23 data collection partners are involved and the first data imports have been performed successfully. Data processing and analysis is an on-going process. Conclusions: We reached a consensus on a core data set and established data sharing processes with multiple partners to address an urgent need for information to guide clinical practice. First results show that partners are motivated to share data to attain the ultimate joint goal: better understand the effect of COVID-19 in PwMS.-
dc.description.sponsorshipWe would like to thank the sponsors of the Multiple Sclerosis Data Alliance and the Multiple Sclerosis International Federation for providing financial support. Special thanks goes to QMENTA for kindly providing us with the central platform. The authors thank everyone who actively participated in any of the global teleconferences, brainstorms and task force meetings. We would like to thank all the PwMS and healthcare professionals who already contributed to the different data collection efforts. We also want to thank Jan Samyn, Margo Heremans, Angela Hooper, Jorina Nickmans, Gunther Meyer and Victoria Gilbert to support us with ensuring the operational power we needed to speed-up our progress.-
dc.language.isoen-
dc.publisherSAGE PUBLICATIONS LTD-
dc.rightsThe Author(s), 2020. Article reuse guidelines: CC-BY-NC sagepub.com/journalspermissions-
dc.subject.otherMultiple sclerosis-
dc.subject.otherpandemics-
dc.subject.otherCOVID-19-
dc.subject.otherdata collection-
dc.subject.otherregistries-
dc.subject.othercoronavirus 2-
dc.subject.otherhumans-
dc.titleCOVID-19 in people with multiple sclerosis: A global data sharing initiative-
dc.typeJournal Contribution-
dc.identifier.epage1162-
dc.identifier.issue10-
dc.identifier.spage1157-
dc.identifier.volume26-
local.bibliographicCitation.jcatA1-
dc.description.notesPeeters, LM (corresponding author), Hasselt Univ, Biomed Res Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium.; Peeters, LM (corresponding author), Hasselt Univ, Data Sci Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium.-
dc.description.notesliesbet.peeters@uhasselt.be-
dc.description.otherPeeters, LM (corresponding author), Hasselt Univ, Biomed Res Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium; Hasselt Univ, Data Sci Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium. liesbet.peeters@uhasselt.be-
local.publisher.place1 OLIVERS YARD, 55 CITY ROAD, LONDON EC1Y 1SP, ENGLAND-
local.type.refereedRefereed-
local.type.specifiedArticle-
dc.identifier.doi10.1177/1352458520941485-
dc.identifier.pmid32662757-
dc.identifier.isiWOS:000548876400001-
dc.contributor.orcidMagyari, Melinda/0000-0002-0972-5222; Pirmani,-
dc.contributor.orcidAshkan/0000-0003-4549-1002; De Raedt, Luc/0000-0002-6860-6303; Walton,-
dc.contributor.orcidClare/0000-0002-8128-6439-
local.provider.typewosris-
local.uhasselt.uhpubyes-
local.description.affiliation[Peeters, Liesbet M.; Geys, Lotte; Pirmani, Ashkan] Hasselt Univ, Biomed Res Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium.-
local.description.affiliation[Peeters, Liesbet M.; Geys, Lotte; Pirmani, Ashkan] Hasselt Univ, Data Sci Inst, Agoralaan Bldg C, B-3590 Diepenbeek, Belgium.-
local.description.affiliation[Parciak, Tina] Univ Med Ctr Gottingen, Dept Med Informat, Gottingen, Germany.-
local.description.affiliation[Walton, Clare; Rijke, Nick] MS Int Federat, London, England.-
local.description.affiliation[Moreau, Yves; De Brouwer, Edward; Raimondi, Daniele; Pirmani, Ashkan] Katholieke Univ Leuven, ESAT STADIUS, Leuven, Belgium.-
local.description.affiliation[Kalincik, Tomas] Univ Melbourne, Clin Outcomes Res CORe Unit, Melbourne, Vic, Australia.-
local.description.affiliation[Kalincik, Tomas] Royal Melbourne Hosp, Melbourne MS Ctr, Dept Neurol, Melbourne, Vic, Australia.-
local.description.affiliation[Edan, Gilles] CHU Pontchaillou, Dept Neurol, Rennes, France.-
local.description.affiliation[Simpson-Yap, Steve] Univ Melbourne, Melbourne Sch Populat & Global Hlth, Neuroepidemiol Unit, Melbourne, Vic, Australia.-
local.description.affiliation[Simpson-Yap, Steve] Univ Tasmania, Menzies Inst Med Res, Hobart, Tas, Australia.-
local.description.affiliation[De Raedt, Luc; Dauxais, Yann; Gautrais, Clement] Katholieke Univ Leuven, Dept Comp Sci, Leuven, Belgium.-
local.description.affiliation[De Raedt, Luc; Dauxais, Yann; Gautrais, Clement] Katholieke Univ Leuven, Leuven AI, Leuven, Belgium.-
local.description.affiliation[Rodrigues, Paulo R.; McKenna, Landon; Lazovski, Nikola] QMENTA, Barcelona, Spain.-
local.description.affiliation[Hillert, Jan; Forsberg, Lars; Spelman, Tim] Swedish MS Registry, Dept Clin Neurosci, Stockholm, Sweden.-
local.description.affiliation[McBurney, Robert; Schmidt, Hollie] Accelerated Cure Project MS, iConquerMS People Powered Res Network, Waltham, MA USA.-
local.description.affiliation[Bergmann, Arnfin; Braune, Stefan] NeuroTransData, NeuroTransData Study Grp, Neuburg, Germany.-
local.description.affiliation[Stahmann, Alexander] MS Forsch & Projektentwicklungs gGmbH, Hannover, Germany.-
local.description.affiliation[Middleton, Rodden; Nicholas, Richard] UK MS Register, Swansea, W Glam, Wales.-
local.description.affiliation[Salter, Amber; Bebo, Bruce F.] COViMS, St Louis, MO USA.-
local.description.affiliation[Salter, Amber] Washington Univ, Div Biostat, St Louis, MO USA.-
local.description.affiliation[Bebo, Bruce F.] Natl Multiple Sclerosis Soc, Portland, OR USA.-
local.description.affiliation[Rojas, Juan, I] Hosp Univ CEMIC, Neurol Dept, Buenos Aires, DF, Argentina.-
local.description.affiliation[Rojas, Juan, I; Alonso, Ricardo] RELACOEM, Buenos Aires, DF, Argentina.-
local.description.affiliation[van der Walt, Anneke; Butzkueven, Helmut] Monash Univ, Dept Neurosci, MSBase Registry, Cent Clin Sch, Melbourne, Vic, Australia.-
local.description.affiliation[van der Mei, Ingrid] Univ Tasmania, Menzies Inst Med Res, Australian MS Longitudinal Study AMSLS, Hobart, Tas, Australia.-
local.description.affiliation[Ivanov, Rumen] Bulgarian SmartMS COVID 19 Dataset, Sofia, Bulgaria.-
local.description.affiliation[Hellwig, Kerstin] Katholisches Klinikum Bochum, Dept Neurol, LEOSS, Bochum, Germany.-
local.description.affiliation[do Olival, Guilherme Sciascia] Brazilian Multiple Sclerosis Assoc ABEM, Sao Paulo, Brazil.-
local.description.affiliation[Cohen, Jeffrey A.] Cleveland Clin, Mellen MS Ctr, MS COVID 19 Registry, Cleveland, OH 44106 USA.-
local.description.affiliation[Van Hecke, Wim] Icometrix Icompan, Leuven, Belgium.-
local.description.affiliation[Dobson, Ruth] Queen Mary Univ London, OptimiseMS Prevent Neurol Unit, London, England.-
local.description.affiliation[Magyari, Melinda] Univ Hosp Rigshosp, Dept Neurol, Danish Multiple Sclerosis Registry, Glostrup, Denmark.-
local.description.affiliation[Brum, Doralina Guimaraes] Univ Estadual Paulista Unesp, Fac Med, REDONE Brazilian Registry Multiple Sclerosis & Ne, Opt Spectrum Disorders, Sao Paulo, Brazil.-
local.description.affiliation[Alonso, Ricardo] Multiple Sclerosis Univ Ctr, Ramos Mejia Hosp EMA, Buenos Aires, DF, Argentina.-
local.description.affiliation[Nicholas, Richard] Imperial Coll London, London, England.-
local.description.affiliation[Nicholas, Richard] Swansea Univ, Swansea, W Glam, Wales.-
local.description.affiliation[Bauer, Johana] EMA, Mental Hlth Area, Buenos Aires, DF, Argentina.-
local.description.affiliation[Chertcoff, Anibal] Hosp Britanico Buenos Aires EMA, MS & Demyelinating Dis, Buenos Aires, DF, Argentina.-
local.description.affiliation[de Seze, Jerome] Strasbourg Univ Hosp, Dept Neurol, Strasbourg, France.-
local.description.affiliation[de Seze, Jerome; Louapre, Celine] COVISEP, Paris, France.-
local.description.affiliation[Louapre, Celine] Sorbonne Univ, Inst Cerveau ICM, Hop Pitie Salpetriere, AP HP, Paris, France.-
local.description.affiliation[Comi, Giancarlo] Osped San Raffaele, Inst Expt Neurol, Milan, Italy.-
item.fullcitationPEETERS, Liesbet; PARCIAK, Tina; Walton, Clare; GEYS, Lotte; Moreau, Yves; DE BROUWER, Edward; Raimondi, Daniele; PIRMANI, Ashkan; Kalincik, Tomas; Edan, Gilles; Simpson-Yap, Steve; DE RAEDT, Sylvie; Dauxais, Yann; Gautrais, Clement; Rodrigues, Paulo R.; McKenna, Landon; Lazovski, Nikola; Hillert, Jan; Forsberg, Lars; SPELMANS, Nele; McBurney, Robert; Schmidt, Hollie; Bergmann, Arnfin; Braune, Stefan; Stahmann, Alexander; Middleton, Rodden; Salter, Amber; Bebo, Bruce F.; Rojas, Juan, I; van der Walt, Anneke; Butzkueven, Helmut; van der Mei, Ingrid; Ivanov, Rumen; Hellwig, Kerstin; do Olival, Guilherme Sciascia; Cohen, Jeffrey A.; Van Hecke, Wim; Dobson, Ruth; Magyari, Melinda; Brum, Doralina Guimaraes; Alonso, Ricardo; Nicholas, Richard; Bauer, Johana; Chertcoff, Anibal; de Seze, Jerome; Louapre, Celine; Comi, Giancarlo & Rijke, Nick (2020) COVID-19 in people with multiple sclerosis: A global data sharing initiative. In: MULTIPLE SCLEROSIS JOURNAL, 26 (10) , p. 1157 -1162.-
item.validationecoom 2021-
item.contributorPEETERS, Liesbet-
item.contributorPARCIAK, Tina-
item.contributorWalton, Clare-
item.contributorGEYS, Lotte-
item.contributorMoreau, Yves-
item.contributorDE BROUWER, Edward-
item.contributorRaimondi, Daniele-
item.contributorPIRMANI, Ashkan-
item.contributorKalincik, Tomas-
item.contributorEdan, Gilles-
item.contributorSimpson-Yap, Steve-
item.contributorDE RAEDT, Sylvie-
item.contributorDauxais, Yann-
item.contributorGautrais, Clement-
item.contributorRodrigues, Paulo R.-
item.contributorMcKenna, Landon-
item.contributorLazovski, Nikola-
item.contributorHillert, Jan-
item.contributorForsberg, Lars-
item.contributorSPELMANS, Nele-
item.contributorMcBurney, Robert-
item.contributorSchmidt, Hollie-
item.contributorBergmann, Arnfin-
item.contributorBraune, Stefan-
item.contributorStahmann, Alexander-
item.contributorMiddleton, Rodden-
item.contributorSalter, Amber-
item.contributorBebo, Bruce F.-
item.contributorRojas, Juan, I-
item.contributorvan der Walt, Anneke-
item.contributorButzkueven, Helmut-
item.contributorvan der Mei, Ingrid-
item.contributorIvanov, Rumen-
item.contributorHellwig, Kerstin-
item.contributordo Olival, Guilherme Sciascia-
item.contributorCohen, Jeffrey A.-
item.contributorVan Hecke, Wim-
item.contributorDobson, Ruth-
item.contributorMagyari, Melinda-
item.contributorBrum, Doralina Guimaraes-
item.contributorAlonso, Ricardo-
item.contributorNicholas, Richard-
item.contributorBauer, Johana-
item.contributorChertcoff, Anibal-
item.contributorde Seze, Jerome-
item.contributorLouapre, Celine-
item.contributorComi, Giancarlo-
item.contributorRijke, Nick-
item.fulltextWith Fulltext-
item.accessRightsOpen Access-
crisitem.journal.issn1352-4585-
crisitem.journal.eissn1477-0970-
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