Please use this identifier to cite or link to this item:
http://hdl.handle.net/1942/34102
Title: | Understanding and Being Understood: Information and Care Needs of 2113 Patients With Confirmed or Suspected COVID-19 | Authors: | Houben-Wilke, Sarah Delbressine, Jeannet Vaes, Anouk Goërtz, Yvonne Meys, Roy Machado, Felipe VAN HERCK, Maarten BURTIN, Chris Posthuma, Rein Franssen, Frits van Loon, Nicole Hajian, Bita Vijlbrief, Herman Spies, Yvonne van 't Hul, Alex Janssen, Daisy SPRUIT, Martijn A. |
Issue Date: | 2021 | Publisher: | SAGE Publications | Source: | Journal of Patient Experience, 8 | Abstract: | To become a proactive and informed partner in postacute coronavirus disease 2019 (COVID-19) management, patients need to have the knowledge, skills, and confidence to self-manage COVID-19-related health challenges. Due to several restrictions and consequently social isolation, online platforms and forums where people can share information and experiences became more popular and influential. Therefore, this study aimed to identify perceived information needs and care needs of members of 2 Facebook groups for patients with COVID-19 and persistent complaints in the Netherlands and Belgium and patients with COVID-19 who registered at a website of the Lung Foundation Netherlands. Besides demographics and clinical characteristics , the degree of satisfaction with care during and after the infection as well as satisfaction with available information were assessed. Open text fields revealed specific information needs which were summarized. Patients with confirmed or suspected COVID-19 perceive various unmet needs varying from specific information needs (eg, information about permanent lung damage) to general needs (eg, being heard and understood). These data lead to several recommendations to improve care for patients with COVID-19 and justify further development of online platforms specifically addressing these unmet needs. | Keywords: | COVID-19;corona;unmet needs;information needs;long-term symptoms;social support | Document URI: | http://hdl.handle.net/1942/34102 | ISSN: | 2374-3743 | e-ISSN: | 2374-3735 | DOI: | 10.1177/2374373521997222 | ISI #: | WOS:000649149900001 | Datasets of the publication: | MEC2020/041 and METC2020-1978 | Rights: | This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). | Category: | A1 | Type: | Journal Contribution | Validations: | vabb 2023 |
Appears in Collections: | Research publications |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
Houben-Wilke et al. JPE 2021 information needs COVID (1).pdf | Published version | 529.41 kB | Adobe PDF | View/Open |
WEB OF SCIENCETM
Citations
6
checked on Apr 30, 2024
Page view(s)
22
checked on Jun 28, 2022
Download(s)
8
checked on Jun 28, 2022
Google ScholarTM
Check
Altmetric
Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.