Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/35953
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dc.contributor.authorChertcoff, Anibal-
dc.contributor.authorBauer, Johana-
dc.contributor.authorSilva, Berenice Anabel-
dc.contributor.authorAldecoa, Mayra-
dc.contributor.authorEizaguirre, Maria Barbara-
dc.contributor.authorRodriguez, Roberto-
dc.contributor.authorChereque, Ana-
dc.contributor.authorHeudebert, Maria Lourdes Rodriguez-
dc.contributor.authorMilanesi, Veronica-
dc.contributor.authorMorales, Lourdes-
dc.contributor.authorCastellon, Melba-
dc.contributor.authorPineda, Suyapa Mejia-
dc.contributor.authorFerrandina, Flavia-
dc.contributor.authorHenestroza, Paula-
dc.contributor.authorPeraza, Margarita Ruiz-
dc.contributor.authorRivas, Fatima Vallecillo-
dc.contributor.authorLopez, Lucia Cedeno-
dc.contributor.authorHerrera, Leticia-
dc.contributor.authorSosa, Marta-
dc.contributor.authorMunoz, Veronica Cruchet-
dc.contributor.authorBarahona, Ana Silvia-
dc.contributor.authorGudino, Luz Maria Ramirez-
dc.contributor.authorCarballido, Susana-
dc.contributor.authorWalton, Clare-
dc.contributor.authorPEETERS, Liesbet-
dc.contributor.authorRijke, Nick-
dc.contributor.authorGarcea, Orlando-
dc.contributor.authorCarra, Adriana-
dc.contributor.authorAlonso, Ricardo-
dc.date.accessioned2021-11-30T09:00:17Z-
dc.date.available2021-11-30T09:00:17Z-
dc.date.issued2021-
dc.date.submitted2021-10-28T09:50:33Z-
dc.identifier.citationMultiple sclerosis and related disorders (Print), 54 , (Art N° 103120)-
dc.identifier.issn22110348-
dc.identifier.urihttp://hdl.handle.net/1942/35953-
dc.description.abstractBackground: The COVID-19 pandemic has resulted in uncertain access to medical treatment for people with multiple sclerosis (pwMS) all over the world. However, there is no data regarding its impact on access to health care of pwMS from Latin America. Objectives: We investigated and described changes in health care delivery for pwMS from Latin America during the COVID-19 pandemic. Methods: PwMS from 18 patient organizations of the region completed a web-based survey hosted from May to October 2020. Results: A total of 602 pwMS completed the questionnaire. Changes in disease-modifying therapies (DMTs) use: 6.7% of pwMS on continuous DMTs claimed to stopped them; 14.1% of those on infusion therapies declared to postpone their dosing; 68.8% declared delaying the initiation of a DMT. Disruptions in accessing rehabilitation services were reported by 65.7%. Changes in laboratory and MRI monitoring were reported by 30% and 33%, respectively. In a multivariable-adjusted logistic regression model, changes in laboratory monitoring were significantly associated with increased odds of postponing MRI monitoring (OR 4.09 CI95% 2.79-6.00, p < 0.001). Conclusions: The COVID-19 pandemic has disrupted all aspects of the routine care for pwMS from Latin America. Consequences are yet to be determined.-
dc.description.sponsorshipThe authors thank all those who actively participated in the teleconferences, webinars, and task force meetings related to the project. We would like to thank all the pwMS and the patient organizations from the region who were involved and contributed to the different data collection efforts. Finally, we would especially like to thank Paulina Arce Casillas from the MSIF for her efforts to disseminate this initiative and for her coordination between the different associations, the study authors and the MSIF.-
dc.language.isoen-
dc.publisherELSEVIER SCI LTD-
dc.rights2021 Elsevier B.V. All rights reserved.-
dc.subject.otherMultiple sclerosis-
dc.subject.otherCOVID-19 pandemic-
dc.subject.otherPatient-Reported outcomes-
dc.subject.otherLatin america-
dc.subject.otherHealth care access-
dc.titleChanges on the health care of people with multiple sclerosis from Latin America during the COVID-19 pandemic-
dc.typeJournal Contribution-
dc.identifier.volume54-
local.format.pages8-
local.bibliographicCitation.jcatA1-
dc.description.notesChertcoff, A (corresponding author), Esclerosis Multiple Argentina EMA, Uriarte 1465, RA-1414 Buenos Aires, DF, Argentina.-
dc.description.notesachertcoff@hbritanico.com.ar-
local.publisher.placeTHE BOULEVARD, LANGFORD LANE, KIDLINGTON, OXFORD OX5 1GB, OXON, ENGLAND-
local.type.refereedRefereed-
local.type.specifiedArticle-
local.bibliographicCitation.artnr103120-
dc.identifier.doi10.1016/j.msard.2021.103120-
dc.identifier.pmid34243104-
dc.identifier.isiWOS:000703619200021-
dc.identifier.eissn2211-0356-
local.provider.typewosris-
local.uhasselt.uhpubyes-
local.description.affiliation[Chertcoff, Anibal; Carra, Adriana] Hosp Britan Buenos Aires, Area Enfermedades Desmielinizantes, Perdriel 74, RA-1280 Buenos Aires, DF, Argentina.-
local.description.affiliation[Chertcoff, Anibal; Bauer, Johana; Silva, Berenice Anabel; Carra, Adriana; Alonso, Ricardo] Esclerosis Multiple Argentina EMA, Uriarte 1465, RA-1414 Buenos Aires, DF, Argentina.-
local.description.affiliation[Eizaguirre, Maria Barbara; Rodriguez, Roberto; Chereque, Ana; Garcea, Orlando; Alonso, Ricardo] Ctr Univ Esclerosis Multiple, Hosp Ramos Mejia, Gen Urquiza 609, RA-1221 Buenos Aires, DF, Argentina.-
local.description.affiliation[Rodriguez, Roberto] Fdn Dominicana EM, Spirit Coworking Presidente Gonzalez, Renacer, Santo Domingo, Dominican Rep.-
local.description.affiliation[Chereque, Ana] Asociac Esclerosis Multiple Peru, Calle Cayo Roca Zela 540 Urb, Lima, Peru.-
local.description.affiliation[Heudebert, Maria Lourdes Rodriguez] Asociac Hecho Con Amor, Calle Galeano 645 Urb, Lima, Peru.-
local.description.affiliation[Milanesi, Veronica] Asociac Costarricense Esclerosis Multiple, Calle Socola, San Jose 10203, Costa Rica.-
local.description.affiliation[Morales, Lourdes] Asociac Pacientes Esclerosis Multiple & Enfermeda, Presidente Franco 982,3er Piso,Oficina 301, Asuncion, Paraguay.-
local.description.affiliation[Castellon, Melba] Asociac Hondurena Esclerosis Multiple ASOHEM, Edificio Ctr Comercial Maya, Blvd Morazan, Tegucigalpa, Honduras.-
local.description.affiliation[Pineda, Suyapa Mejia] Fdn Esclerosis Multiple Amor FEMA, San Pedro Sula, Honduras.-
local.description.affiliation[Henestroza, Paula] Asociac Lucha Esclerosis Multiple ALCEM, Barabino 690, RA-1718 Buenos Aires, DF, Argentina.-
local.description.affiliation[Peraza, Margarita Ruiz] Esclerosis Multiple CUBA, CUBA Calle 223 23604, Havana 19250, Cuba.-
local.description.affiliation[Rivas, Fatima Vallecillo] Asociac Nicaraguense Esclerosis Multiple ANEM, Carretera Norte, Managua, Nicaragua.-
local.description.affiliation[Lopez, Lucia Cedeno] Asociac Pacientes Esclerosis Multiple & Enfermeda, Av Atahualpa Oe1-198, Quito 170147, Ecuador.-
local.description.affiliation[Herrera, Leticia] Fdn Ecuatoriana Esclerosis Multiple FUNDEM, Jorge Drom 37-79, Quito, Ecuador.-
local.description.affiliation[Herrera, Leticia] Union Nacl Periodistas Sect I naquito, Quito, Ecuador.-
local.description.affiliation[Sosa, Marta] Asociac Lucha Esclerosis Multiple Colombia ALEM, Carrera 50C 59-87, Medellin, Colombia.-
local.description.affiliation[Munoz, Veronica Cruchet] Corp Esclerosis Multiple Chile, Cristobal Colon 5196,Dept 707, Santiago, Chile.-
local.description.affiliation[Barahona, Ana Silvia] Asociac Salvadorena Enfermedades Neuromusculares, Ave Buenos Aires 5, San Salvador, El Salvador.-
local.description.affiliation[Gudino, Luz Maria Ramirez] Federac Esclerosis Multiple Mexico FEMMEX, Zacatecas 24, Mexico City 06700, DF, Mexico.-
local.description.affiliation[Carballido, Susana] Esclerosis Multiple Uruguay EMUR, Yaguaron 1407,Oficina 718, Montevideo 11100, Uruguay.-
local.description.affiliation[Walton, Clare] MS Soc, 372 Edgware Rd, London NW2 6ND, England.-
local.description.affiliation[Peeters, Liesbet M.] Hasselt Univ, Univ Multiple Sclerosis Ctr, Biomed Res Inst, Hasselt, Belgium.-
local.description.affiliation[Peeters, Liesbet M.] Hasselt Univ, Data Sci Inst, Hasselt, Belgium.-
local.description.affiliation[Rijke, Nick] MS Int Federat, Skyline House 200 Union St, London SE1 0LX, England.-
local.description.affiliation[Alonso, Ricardo] Hosp Univ Sanatorio, Av Cordoba 3933, RA-1188 Buenos Aires, DF, Argentina.-
local.uhasselt.internationalyes-
item.fulltextWith Fulltext-
item.accessRightsRestricted Access-
item.validationecoom 2022-
item.contributorChertcoff, Anibal-
item.contributorBauer, Johana-
item.contributorSilva, Berenice Anabel-
item.contributorAldecoa, Mayra-
item.contributorEizaguirre, Maria Barbara-
item.contributorRodriguez, Roberto-
item.contributorChereque, Ana-
item.contributorHeudebert, Maria Lourdes Rodriguez-
item.contributorMilanesi, Veronica-
item.contributorMorales, Lourdes-
item.contributorCastellon, Melba-
item.contributorPineda, Suyapa Mejia-
item.contributorFerrandina, Flavia-
item.contributorHenestroza, Paula-
item.contributorPeraza, Margarita Ruiz-
item.contributorRivas, Fatima Vallecillo-
item.contributorLopez, Lucia Cedeno-
item.contributorHerrera, Leticia-
item.contributorSosa, Marta-
item.contributorMunoz, Veronica Cruchet-
item.contributorBarahona, Ana Silvia-
item.contributorGudino, Luz Maria Ramirez-
item.contributorCarballido, Susana-
item.contributorWalton, Clare-
item.contributorPEETERS, Liesbet-
item.contributorRijke, Nick-
item.contributorGarcea, Orlando-
item.contributorCarra, Adriana-
item.contributorAlonso, Ricardo-
item.fullcitationChertcoff, Anibal; Bauer, Johana; Silva, Berenice Anabel; Aldecoa, Mayra; Eizaguirre, Maria Barbara; Rodriguez, Roberto; Chereque, Ana; Heudebert, Maria Lourdes Rodriguez; Milanesi, Veronica; Morales, Lourdes; Castellon, Melba; Pineda, Suyapa Mejia; Ferrandina, Flavia; Henestroza, Paula; Peraza, Margarita Ruiz; Rivas, Fatima Vallecillo; Lopez, Lucia Cedeno; Herrera, Leticia; Sosa, Marta; Munoz, Veronica Cruchet; Barahona, Ana Silvia; Gudino, Luz Maria Ramirez; Carballido, Susana; Walton, Clare; PEETERS, Liesbet; Rijke, Nick; Garcea, Orlando; Carra, Adriana & Alonso, Ricardo (2021) Changes on the health care of people with multiple sclerosis from Latin America during the COVID-19 pandemic. In: Multiple sclerosis and related disorders (Print), 54 , (Art N° 103120).-
crisitem.journal.issn2211-0348-
crisitem.journal.eissn2211-0356-
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