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Title: | Multiple Sclerosis Multidisciplinary Care: A National Survey and Lessons for the Global Community | Authors: | Van Hijfte, Liesbeth Cambron, Melissa Capron, Brigitte Dachy, Bernard Decoo, Danny Dive, Dominique Dubois, Benedicte El Sankari, Souraya London, Frederic Perrotta, Gaetano POPESCU, Veronica Van Pesch, Vincent VAN WIJMEERSCH, Bart Willekens, Barbara Laureys, Guy |
Issue Date: | 2024 | Publisher: | ELSEVIER SCI LTD | Source: | Multiple Sclerosis and Related Disorders, 85 (Art N° 105540) | Abstract: | Background: Access to, standardization and reimbursement of multidisciplinary care for people with MS (PwMS) is lacking in many countries. Therefore, this study aims to describe the current multidisciplinary care for people with MS (PwMS) in Belgium and identify benefits, needs and future perspectives Methods: A survey for PwMS questioned various aspects of MS and viewpoints on care. For MS nurses (MSN) and neurologists, employment, education, job-content, care organization and perspectives were inquired. Descriptive and univariate statistics were performed Results: The PwMS survey comprised 916 respondents with a mean age of 46 +/- 12.7 years and 75,4 % of the respondents being female. The majority of the participants had relapsing remitting MS (60.8 %) and the mean patient determined disease steps (PDDS) was 2.0 (IQR =3). 65.3 % and 60.4 % of the PwMS reported having access to a multidisciplinary team (MDT) or MSN. Access to an MSN was associated with more frequent disease modifying treatment ( p =.015), spasticity ( p =.042) and gait treatment ( p =.035), but also more physiotherapy ( p =.004), driver 's license adjustment ( p <.001) and a higher employment rate ( p =.004). MDT access was associated with more frequent symptomatic bladder treatment ( p =.047), higher physiotherapy rate ( p <.001), higher work- ( p =.002), insurance- ( p <.001) and home support measures ( p =.019). PwMS without an available MDT more often indicated that MS care needs improvement ( p <.001). MSN 's ( n = 22) were mainly funded through various budgets, including hospital and neurology practice budgets. Finally, 69 % and 75 % neurologists ( n = 62) working without an MSN or MDT stated a need of such support and 61 % agreed that MDT 's should be organized at hospital-network level | Notes: | Van Hijfte, L (corresponding author), Ghent Univ Hosp, Dept Neurol, Res Unit 4Brain, Ghent, Belgium.; Van Hijfte, L (corresponding author), C Heymanslaan 10, Ghent, Belgium. Liesbeth.vanhijfte@ugent.be |
Keywords: | Multiple sclerosis;Healthcare;Multidisciplinary;Disease modifying treatment;Quality of life | Document URI: | http://hdl.handle.net/1942/43036 | ISSN: | 2211-0348 | e-ISSN: | 2211-0356 | DOI: | 10.1016/j.msard.2024.105540 | ISI #: | 001215869700001 | Rights: | 2024 Elsevier B.V. All rights reserved. | Category: | A1 | Type: | Journal Contribution |
Appears in Collections: | Research publications |
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Multiple Sclerosis Multidisciplinary Care_ A National Survey and Lessons for the Global Community.pdf Restricted Access | Published version | 2.7 MB | Adobe PDF | View/Open Request a copy |
MS Survey_Clean.pdf | Peer-reviewed author version | 657.63 kB | Adobe PDF | View/Open |
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