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http://hdl.handle.net/1942/44697
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DC Field | Value | Language |
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dc.contributor.author | PEETERS, Liesbet | - |
dc.date.accessioned | 2024-11-25T09:35:46Z | - |
dc.date.available | 2024-11-25T09:35:46Z | - |
dc.date.issued | 2024 | - |
dc.date.submitted | 2024-11-21T12:01:49Z | - |
dc.identifier.citation | Frontiers in Immunology, 15 (Art N° 1461361) | - |
dc.identifier.uri | http://hdl.handle.net/1942/44697 | - |
dc.description.abstract | This paper explores the significant role of real-world data (RWD) in advancing our understanding and management of Multiple Sclerosis (MS). RWD has proven invaluable in MS research and care, offering insights from larger and diverse patient populations. A key focus of the paper is the European Health Data Space (EHDS), a significant development that promises to change how healthcare data is managed across Europe. This initiative is particularly relevant to the MS community. The paper highlights various data initiatives, discussing their importance for those affected by MS. Despite the potential benefits, there are challenges and concerns, especially about ensuring that the growth of various data platforms remains beneficial for MS patients. The paper suggests practical actions for the global MS community to consider, aimed at optimizing the use of RWD. The emphasis of this discussion is on the secondary use of health data, particularly in the European context. The content is based on the author's own experiences and interpretations, offering a personal yet informed view on using RWD to improve MS research and patient care. | - |
dc.description.sponsorship | The authors acknowledge the assistance of ChatGPT4, an AI language model developed by OpenAI, for its support in structuring and refining the content of this paper. | - |
dc.language.iso | en | - |
dc.publisher | FRONTIERS MEDIA SA | - |
dc.rights | 2024 Peeters. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. | - |
dc.subject.other | real-world data | - |
dc.subject.other | European Health Data Space | - |
dc.subject.other | secondary use of health data | - |
dc.subject.other | collaborative research | - |
dc.subject.other | data interoperability | - |
dc.title | The arisal of data spaces: why I am excited and worried | - |
dc.type | Journal Contribution | - |
dc.identifier.volume | 15 | - |
local.format.pages | 8 | - |
local.bibliographicCitation.jcat | A1 | - |
dc.description.notes | Peeters, LM (corresponding author), Univ MS Ctr UMSC, Hasselt Pelt, Belgium.; Peeters, LM (corresponding author), Hasselt Univ, Biomed Res Inst BIOMED, Diepenbeek, Belgium.; Peeters, LM (corresponding author), Hasselt Univ, Data Sci Inst DSI, Diepenbeek, Belgium. | - |
dc.description.notes | liesbet.peeters@uhasselt.be | - |
local.publisher.place | AVENUE DU TRIBUNAL FEDERAL 34, LAUSANNE, CH-1015, SWITZERLAND | - |
local.type.refereed | Refereed | - |
local.type.specified | Article | - |
local.bibliographicCitation.artnr | 1461361 | - |
dc.identifier.doi | 10.3389/fimmu.2024.1461361 | - |
dc.identifier.pmid | 39502694 | - |
dc.identifier.isi | 001348412300001 | - |
local.provider.type | wosris | - |
local.description.affiliation | [Peeters, Liesbet M.] Univ MS Ctr UMSC, Hasselt Pelt, Belgium. | - |
local.description.affiliation | [Peeters, Liesbet M.] Hasselt Univ, Biomed Res Inst BIOMED, Diepenbeek, Belgium. | - |
local.description.affiliation | [Peeters, Liesbet M.] Hasselt Univ, Data Sci Inst DSI, Diepenbeek, Belgium. | - |
local.uhasselt.international | no | - |
item.fulltext | With Fulltext | - |
item.fullcitation | PEETERS, Liesbet (2024) The arisal of data spaces: why I am excited and worried. In: Frontiers in Immunology, 15 (Art N° 1461361). | - |
item.accessRights | Open Access | - |
item.contributor | PEETERS, Liesbet | - |
crisitem.journal.issn | 1664-3224 | - |
crisitem.journal.eissn | 1664-3224 | - |
Appears in Collections: | Research publications |
Files in This Item:
File | Description | Size | Format | |
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fimmu-15-1461361.pdf | Published version | 2.35 MB | Adobe PDF | View/Open |
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