A survey of workload practice of nurses caring for people with MS in Europe

Abstract

Introduction: MS Nurse PROfessional is an educational programme designed to support nurses caring for people with MS (PwMS). With over 8,000 members across Europe, it serves as a platform to increase knowledge, enhance skills, and share expertise. Objectives/Aims: As part of advocating for improved working conditions, MS Nurse PROfessional conducted a survey to understand current workload practices of Neuroscience nurses in Europe, and their opinions on potential solutions to address unfinished tasks. Methods: Developed by the Steering and Syllabus Committee of MS Nurse PROfessional, the online survey included demographic questions, inquiries about professional background, and queries on workload management when caring for PwMS. Questions were reviewed by RIMS board members and piloted by 6 nurses from our community, with the survey available in 7 languages. MS Nurse PROfessional community members were invited to participate. Preliminary findings are described. Results: As of 31st March 2024, 95 nurses from 21 countries have completed the survey. 62% (n=59) of respondents have a caseload >300 PwMS per year, who they see ⩾2 times/year, spending between 30 minutes and 3 hours including consultation and follow-up tasks. Nurses dedicate most time to treatment and symptom management. Work left unfinished due to time constraints includes clinical trials, social benefits advice, diagnostic procedures and paperwork completion. Over half of nurses surveyed have no or limited administrative support. Preliminary findings indicate that the nursing community is advocating for an increase in the number of nurse colleagues (42%), increased access to psychological support for the PwMS (41%), the ability for nurses to refer to a multidisciplinary care team (35%) and the ability to independently prescribe certain medications (33%). Conclusion: This survey of nurses caring for PwMS will provide useful insights into current workload practices and awareness of their improved management.