Development of a Core Patient-Reported Outcome (Measures) Set for Pediatric Physical Therapy

Abstract

Purpose: To develop a core set of relevant patient-reported outcomes (PROs) and corresponding measures (PROMs) for pediatric physical therapy, suitable for daily practice, research, and quality assessment.Methods: The research group defined the core set's scope. Relevant PROs were identified through focus groups and interviews with adolescents, parents, and pediatric physical therapists, and supplemented by a scoping review. Findings were assessed by an expert panel. PROs were prioritized via a survey among pediatric physical therapists and selected for the core set. Valid PROMs were selected for each PRO.Results: Nine PROs were selected, grouped into 3 domains: functioning (physical functioning, participation, social functioning), symptoms (pain and fatigue intensity/interference), and overarching (quality of life, perceived overall health). Suitable PROMs were identified for all except "participation."Conclusions: A core PRO(M) set for pediatric physical therapy is presented, with recommendations for use and implementation. Further research should develop a feasible generic PROM for participation.