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Title: | Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report | Authors: | Heesen, Christoph Bruce, Jared FEYS, Peter Sastre-Garriga, Jaume Solari, Alessandra Eliasson, Lina Matthews, Vicki Hausmann, Bettina Ross, Amy Perrin Asano, Miho Imonen-Charalambous, Kaisa Köpke, Sascha Clyne, Wendy Bissell, Paul |
Issue Date: | 2014 | Publisher: | SAGE PUBLICATIONS LTD | Source: | MULTIPLE SCLEROSIS JOURNAL, 20 (13), p. 1795-1798 | Abstract: | Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied. Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session. Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions. Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work. | Notes: | [Heesen, Christoph] Univ Med Ctr, D-20246 Hamburg, Germany. [Bruce, Jared] Univ Missouri, Kansas City, MO 64110 USA. [Feys, Peter] Hasselt Univ, Diepenbeek, Belgium. [Sastre-Garriga, Jaume] Univ Autonoma Barcelona, Serv Neurol Neuroimmunol, Multiple Sclerosis Ctr Catalonia Cemcat, Hosp Univ Vall dHebron, E-08193 Barcelona, Spain. [Solari, Alessandra] Ist Neurol C Besta, Milan, Italy. [Eliasson, Lina] Alantis Healthcare, Cranford, NJ USA. [Matthews, Vicki] MS Trust, Letchworth, England. [Hausmann, Bettina] European MS Platform, Brussels, Belgium. [Ross, Amy Perrin] Int Org MS Nurses, Elkridge, MD USA. [Asano, Miho] Queens Univ, Kingston, ON K7L 3N6, Canada. [Imonen-Charalambous, Kaisa] European Patients Forum, Brussels, Belgium. [Koepke, Sascha] Univ Med Ctr, Lubeck, Germany. [Clyne, Wendy] Coventry Univ, Coventry, W Midlands, England. [Bissell, Paul] Sect Publ Hlth, Sheffield, S Yorkshire, England. | Keywords: | Disease-modifying therapies; multiple sclerosis; rehabilitation; adherence;Disease-modifying therapies; multiple sclerosis; rehabilitation; adherence | Document URI: | http://hdl.handle.net/1942/18099 | ISSN: | 1352-4585 | e-ISSN: | 1477-0970 | DOI: | 10.1177/1352458514531348 | ISI #: | 000345214200023 | Rights: | © The Author(s), 2014. Reprints and permissions: http://www.sagepub.co.uk/journalsPermissions.nav | Category: | A1 | Type: | Journal Contribution | Validations: | ecoom 2015 |
Appears in Collections: | Research publications |
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