Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/49369
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dc.contributor.authorde Koning, L-
dc.contributor.authorWarnink-Kavelaars, J-
dc.contributor.authorvan Vulpen, L-
dc.contributor.authorvan der Hulst, A-
dc.contributor.authorRombaut, L-
dc.contributor.authorvan Meulenbroek, T-
dc.contributor.authorOosterlaan, J-
dc.contributor.authorRAMECKERS, Eugene-
dc.contributor.authorEngelbert, R-
dc.date.accessioned2026-06-22T11:19:27Z-
dc.date.available2026-06-22T11:19:27Z-
dc.date.issued2025-
dc.date.submitted2026-06-22T11:11:58Z-
dc.identifier.citationDisability and rehabilitation, 47 (21) , p. 5611 -5620-
dc.identifier.urihttp://hdl.handle.net/1942/49369-
dc.description.abstractThis pilot study assessed the feasibility, safety, and acceptability of a physical training program combined with parental meetings for children with heritable connective tissue disorders (HCTD), including Marfan syndrome (MFS), Loeys-Dietz syndrome (LDS), and Ehlers-Danlos syndromes (EDS). Secondary, it aimed to explore preliminary observations regarding the program's impact on individual training goals and physical fitness, including aerobic and anaerobic capacity, strength, agility, pain, fatigue, and disability.-
dc.description.sponsorshipFunding This work was supported by SIA RAAK-PRO, a division of the Dutch Organization for Scientific Research (NWO), under grant number SVB. RAAK > PRO02.007. The funding is part of a 5-year research initiative for the project "Follow You", which focuses on developing a follow-up program to evaluate and enhance physical and psychosocial functioning, as well as participation, in children with heritable connective tissue disorders. Acknowledgements We thank the participants, parents, and therapists who participated in this study. We are grateful to SIA RAAK-PRO, a part of the Dutch Organization for Scientific Research, for funding this project (NWO, SVB. RAAK>PRO02.007), which is part of a 5-year research grant for the project "Follow You—a follow-up program on physical and psychosocial functioning and participation in children with (heritable) connective tissue disorders. We also acknowledge the members of the Pediatric Heritable Connective Tissue Disorders study group, the European Reference Network Skin—Mendelian Connective Tissue Disorders, the Dutch Network Marfan and Related Disorders, and both the Marfan and Ehlers-Danlos Patient Association for their productive discussions.-
dc.language.isoen-
dc.publisherTAYLOR & FRANCIS LTD-
dc.rights2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.-
dc.subject.otherHeritable connective tissue disorders-
dc.subject.otherhigh intensity interval training-
dc.subject.otherfunctional power training-
dc.subject.otherphysical fitness-
dc.subject.otherpediatric physical therapy-
dc.titleIntensive physical training in children with heritable connective tissue disorders is feasible and safe: a pilot study-
dc.typeJournal Contribution-
dc.identifier.epage5620-
dc.identifier.issue21-
dc.identifier.spage5611-
dc.identifier.volume47-
local.format.pages11-
local.bibliographicCitation.jcatA1-
local.publisher.place2-4 PARK SQUARE, MILTON PARK, ABINGDON OR14 4RN, OXON, ENGLAND-
local.type.refereedRefereed-
local.type.specifiedArticle-
dc.identifier.doi10.1080/09638288.2025.2467772-
dc.identifier.pmid39991911-
dc.identifier.isi001432770300001-
local.provider.typeWeb of Science-
local.uhasselt.internationalyes-
item.contributorde Koning, L-
item.contributorWarnink-Kavelaars, J-
item.contributorvan Vulpen, L-
item.contributorvan der Hulst, A-
item.contributorRombaut, L-
item.contributorvan Meulenbroek, T-
item.contributorOosterlaan, J-
item.contributorRAMECKERS, Eugene-
item.contributorEngelbert, R-
item.accessRightsOpen Access-
item.fulltextWith Fulltext-
item.fullcitationde Koning, L; Warnink-Kavelaars, J; van Vulpen, L; van der Hulst, A; Rombaut, L; van Meulenbroek, T; Oosterlaan, J; RAMECKERS, Eugene & Engelbert, R (2025) Intensive physical training in children with heritable connective tissue disorders is feasible and safe: a pilot study. In: Disability and rehabilitation, 47 (21) , p. 5611 -5620.-
crisitem.journal.issn0963-8288-
crisitem.journal.eissn1464-5165-
Appears in Collections:Research publications
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