Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/49369
Title: Intensive physical training in children with heritable connective tissue disorders is feasible and safe: a pilot study
Authors: de Koning, L
Warnink-Kavelaars, J
van Vulpen, L
van der Hulst, A
Rombaut, L
van Meulenbroek, T
Oosterlaan, J
RAMECKERS, Eugene 
Engelbert, R
Issue Date: 2025
Publisher: TAYLOR & FRANCIS LTD
Source: Disability and rehabilitation, 47 (21) , p. 5611 -5620
Abstract: This pilot study assessed the feasibility, safety, and acceptability of a physical training program combined with parental meetings for children with heritable connective tissue disorders (HCTD), including Marfan syndrome (MFS), Loeys-Dietz syndrome (LDS), and Ehlers-Danlos syndromes (EDS). Secondary, it aimed to explore preliminary observations regarding the program's impact on individual training goals and physical fitness, including aerobic and anaerobic capacity, strength, agility, pain, fatigue, and disability.
Keywords: Heritable connective tissue disorders;high intensity interval training;functional power training;physical fitness;pediatric physical therapy
Document URI: http://hdl.handle.net/1942/49369
ISSN: 0963-8288
e-ISSN: 1464-5165
DOI: 10.1080/09638288.2025.2467772
ISI #: 001432770300001
Rights: 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
Category: A1
Type: Journal Contribution
Appears in Collections:Research publications

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